For young patients at The Hospital for Sick Children (SickKids) undergoing bone marrow transplants (BMT), recovery means spending 100 days in isolation rooms. For kids dealing with leukemia and other blood disorders, these spaces offer the essential environment for BMT recovery. However, it can be very isolating and challenging without having family and other comforts close by.

One such patient, Ava Hainshwang, diagnosed with acute myeloid leukemia when she was 10, spent 100 days in one of these isolation rooms. She recalls feeling trapped in a small, glass-walled space, like being in a fishbowl — isolated from her family and unable to see her brother.

Photo: Ava Hainshwang, successful bone marrow transplant and BMT ambassador

Fundraising efforts within real estate to renovate & improve isolation rooms for young patients

Recognizing the great impact these rooms have on a child’s emotional and physical recovery, Electric Real Estate has been actively fundraising to renovate and improve isolation rooms, so that kids like Hainshwang can be more supported and comfortable during their recoveries. 

Over the last four years, Electric Real Estate has raised over $350,000, thanks to the support of brokers, real estate agents and real estate leaders in the Toronto area.

Sept. 19 fundraiser raised over $102,000 for SickKids BMT

To continue this effort and in conjunction with World Marrow Donor Day on September 21, the company hosted the Electric Real Estate 2024 – Rodeo Edition fundraiser on Sept. 19. To date, it’s successfully raised $102,573 for SickKids BMT and the group is still counting post-event donations.

Photo: Event attendees

Bruce Johnson, realtor and salesperson with Wasaga Bay, Ontario’s Re/Max By The Bay Brokerage has been a strong supporter of the Children’s Miracle Network and brought in hundreds of realtors worldwide to support their children’s hospitals.

A heartbreaking journey

As his career began in 1997, Johnson signed up to be a Miracle Agent for the Children’s Miracle Network, donating a portion of every home sale to his local children’s hospital. Shortly after, he and his wife, Mary, learned that they were expecting their firstborn child.

Alyssa Rae was born on November 17, 1998, and was immediately rushed to the Neonatal Intensive Care Unit at SickKids Hospital in Toronto with a rare condition known as omphalocele, where organs had grown outside of her body. Her condition was further exacerbated by an exposed heart and issues with her lungs and brain. After three weeks of fighting for her life, on Sunday, December 6, Alyssa passed away.

“We had her for 20 days, and that itself is a miracle. Without SickKids, that would not have happened,” shares Mary.

Mary and Johnson welcomed their second daughter, Holly, and youngest, Jocelyn. Both children also needed treatment from SickKids.

Turning grief into action: The birth of ‘Motorcycle for Miracles’

In 2013, a promise made during one of Holly’s eye surgeries at SickKids turned a planned father-daughter adventure into a fundraiser in memory of Alyssa known as “Motorcycle for Miracles.”

Fundraising began in Wasaga Beach and included the pair riding their motorcycle to Costa Rica to raise money for the Alyssa Rae Johnson Fund at SickKids, supporting high-priority needs in medical research, education and patient care — from stubborn cancers and involved heart conditions to rare diseases and more.

Realtorscare.ca

Over the next six years, with the support of their whole family, Johnson and Holly took an additional two trips: Canada to Costa Rica was followed by Newfoundland to British Columbia and then the “Ends of the Earth” ride spanning the Americas — from the Northwest Territories to Argentina.

“These kids are the toughest human beings on earth. They really are. And they haven’t done anything to deserve to be in the hospitals,” says Johnson. “That’s the steel in our spines that kept us going through stuff that most people would stop for.”

60,000 kilometres for kids: Spreading hope across the Americas

Along their routes, Johnson and Holly met with local agents and brokerages at each stop, to speak with them about the impact of realtor-driven donations and raising money for the Children’s Miracle Network. They also encouraged realtors to start their own campaigns in support of local children’s hospitals.

In total, they rode 60,000 kilometres and raised $750,000 for the Children’s Miracle Network to support sick children everywhere.

In recognition of his worldwide impact, Johnson received a 2019 Good Neighbors Award from the National Association of Realtors in the United States (making him the only non-American recipient ever).

Following this, Johnson ventured on a final solo “Road to a Million” ride through Newfoundland and Labrador in 2022. He successfully raised $1 million for the Children’s Miracle Network — $865,000 of which went directly to the Alyssa Rae Johnson Fund at SickKids in Toronto.

Continuing the fight: Johnson’s promise despite his own battle

This past spring, the Johnsons again received devastating medical news: Bruce had non-operable, stage four lung cancer and his doctors didn’t know how much longer he had. He’s currently receiving targeted treatment to prolong his life.

 

 

 

 

 

 

View this post on Instagram

 

 

 

 

 

 

 

 

 

 

 

 

A post shared by REALTORS Care® (@realtorscare)

While many in his position might slow down and take a step back from work and other commitments, Johnson has tirelessly continued to raise money and awareness of children dealing with severe health issues, despite his own prognosis.

“If I could, I think that I’d like to tell Alyssa about how awesome our Dad is,” says Holly. “I think that he deserves to know that she would be really proud of him and everything that he’s given for her memory.”

The final push to $1 million for Alyssa Rae

Johnson’s final goal is to see the Alyssa Rae Johnson Fund reach $1 million.

Realtorscare.ca

“We are so fragile, and these places put us back together, put these kids back together, are magically trying to put me back together,” he shares. “Even if the drugs are failing me, those will be my last days because that’s something that I really think is meaningful to leave that legacy behind. For Alyssa. I promised her, I can’t and won’t forget her.”

Learn more and support Johnson and his cause here.

Photo: Realtorscare.ca